Friday, January 02, 2015

2015 Bible Memory Opportunity!!

This is an opportunity that I was informed about by a FB friend. I have done an online Bible study and did enjoy it very much, especially with the accountability even if it is online. Living Proof Ministries with Beth Moore is hosting an online Bible Memorization challenge for 2015. Every 2 weeks starting January 1, you, the memorizer, can choose which 1 verse you will work on memorizing for 2 weeks. Post your chosen verse on the 1st and 15th of every month on the Living Proof Ministries blog post for that day after 8 a.m. here at http://blog.lproof.org/. If you are having a hard time choosing a verse, there will be a suggestion given on the blog post if you'd like to use that one. You can also read through some of the other ladies verses for some ideas if you'd like. For this first 2 week period I have chosen II Corinthians 12:9 which states, "Each time he said, “My grace is all you need. My power works best in weakness.” So now I am glad to boast about my weaknesses, so that the power of Christ can work through me." This is something that I need to remember daily as I am trying to do the job to which God has called me.

It's been too long...

I didn't realize that it had been just over 2 years since my last blog post!! Crazy! Not much has changed in the last 2 years. We've all gotten 2 years older, duh. Elli started the Reading Readiness PK3 program in August 2013 and is now in the same Reading Readiness PK4 program this school year. She is learning so much and loving learning. What a blessing to our hearts! Elli has also chosen to receive Jesus as her Savior and has been growing and learning in grace. She has such a tender heart toward that which is good and right. That is just amazing to me. Phil was promoted to a manager at his job in February 2013 and has been working hard since with several different clients, staff, and parents. The Lord has provided him with many opportunities for growth and patience in the last 2 years there. Also, Phil has had many opportunities to preach in our church, Victory Baptist Church, since we were looking for a new pastor. These preaching opportunities have greatly enhanced Phil's delivery of the message and his ability to show his passion for God's Word and righteous living. Such a blessing to have a husband that's yielded to God and growing in his service. Together Phil and I have been working with the youth group at our church. We have watched the Lord grow the youth group in the last year or so -- Such a blessing! With our busy schedules and such a meager group, we began to just make a pot of something for dinner and then bring it to church to "feed" the teens that were there with us on Wednesday nights. Well, we now average about 15 teens on Wednesday nights and about 10 on Sunday mornings. The kids WANT to be there, WANT to learn, and have great questions! They are so different and yet get along so well. Every activity that we have planned, whether work oriented or for fun, has been well attended. This is just such a blessing to our hearts! We've been working with the youth since we moved here in 2007 and it's so cool to see God blessing our faithfulness. Praise him for his work in our lives. I have continued to teach and manage a learning center for students aged 13+. For the past 2 years I have been learning about the awesome opportunity that God has given me to impact each of my students personally and corporately for Him. I have gone through some physical struggles which have not enabled me to become as bothered at my students' childish imperfections and sin natures. I have learned to just take that opportunity to teach each student through discipline about what God's Word says about our behaviors and whether our choices please Him, which is ultimately all that matters in the grand scheme of things, young or old, in school or out of school. This has made my job much more meaningful, and yet, harder because of my physical struggles. In November 2013 I was diagnosed with myasthenia gravis. In February I had been having some double vision while grading tests on Friday afternoons. It gradually became more frequent and more intense. After a few weeks it was occurring daily when I looked to the sides. While driving I first noticed it when I looked in the side mirror and I saw 2 cars on top of each other. At night it would be worse and I soon didn't feel comfortable driving at night. I went to a fair type of social gathering and I was miserable. There was too much action and trying to look around at everything made my eyes terribly tired and then I couldn't focus in on anything. Because of this I went to the eye doctor and they said that everything in my eyes looked fine. The eye doctor referred me to an eye muscle specialist. I went to that doctor and didn't get anywhere. Everything looked fine and he asked me some questions. I had some questions for him because of my hypothyroid and hemolytic anemia and he became frustrated at me for asking him about things that he said he already ruled out. He then HAD to refer me to an neurologist for asking questions. It was very hard to get an appointment to see this neurologist. By this point in time(mid-April) my symptoms of double vision and some lid drooping had subsided so I just forgot about the neurologist and went on my merry way. Well, by the time that school had started in the fall I had noticed some fatigue. I went to see my primary physician and explained my ocular symptoms with my fatigue and they couldn't hardly believe that I might have myasthenia gravis after being diagnosed with hemolytic anemia but they ordered some blood work to test for that and after about 2 weeks wait the results were in. The nurse called me to tell me the results of the blood tests. My Acetylcholine Receptor (AChR) Antibody test was 86 when it should be less than 32 and my Anti-MuSK (muscle-specific kinase) Antibody was 64.86 when you shouldn't have any more than 0.5 present. So definitely I have MG. I did finally actively pursue the recommended neurologist and he prescribed me some mestinon to help with the symptoms. I took it for one day and it upset my stomach so badly that I didn't continue to take it. Besides fatigue I was asymptomatic, until August. August was a very busy month. I started getting ready for school in the beginning of August so that we could travel to NC for 1 week for a wedding. I drove the 10 hours to get to NC and rested some during the week. On the way back to FL, my husband drove and I rested. We stopped at a Dairy Queen and I got an ice cream cone. While I was eating the cone I noticed that my lips felt as if they were numb from eating the cold ice cream. Very strange. Well, one day at a time my centralized fatigue worsened. I was out for the evening with my hubby and was speaking with him and started to sound like I had a lisp. Again, very strange. Well, a week before school started, if I spoke for 5 minutes or more, my tongue and lips would become very tired and it became very hard to understand what I was saying, as if I were a deaf person. VERY STRANGE! I figured out that this was my myasthenia so I found the mestinon and started taking it, WITH FOOD, to try to help my speaking, knowing that in a few days, I would be talking with and to my students ALL day long. The medicine did help, but if I took it when I woke up at 6 and then again at 10, which would be before the medicine wore off, and then again at 2 then my 3 daily tabs were gone I would be practically dead when I got home from school. I started taking 1 tablet every 4 hours to maintain an active teaching life. I received bad symptoms from taking more than 3 tablets per day. =( Eventually these symptoms did subside after just about 4 weeks. I couldn't get in to see the neurologist during this time... I still experienced fatigue but no centralized symptoms. I did get in to see the neurologist and he is concerned because I have symptoms that have not subsided with the mestinon. He is now recommending that I: 1. take IVIG 2. Take Prednisone 3. take Imuran so that I can get the MG in remission because his fear is that when it comes back again it will be much worse, just as it has been with each recurrence, and will affect my breathing muscles landing me in the hospital... Who knows??? 1. I'm having a hard time getting IVIG locally and haven't pursued it since... 2. I DO NOT want to take prednisone as it affects my mood greatly and I do have to work with people at least 8 hours a day... 3. I hesitate taking Imuran as my husband and I would like to have another child and if you're on Imuran they want to give you BC to keep you from getting pregnant because of the harm the medicine might cause to the UNBORN CHILD, which is what a fetus is... Just saying I asked my neurologist about maybe getting Rituxan for MG. He told me that it is not proven profitable for MG and that was the extent of that discussion. I would like to take the Rituxan as I have read that it has helped MG sufferers, and because I have had it in the past for my hemolytic anemia and it worked wonders for basically resetting my immune system, helping us to conceive and getting rid of all physical maladies for about 3 years. I may continue to pursue Rituxan therapy through my primary doctor because he and his staff are very caring and helpful. FYI - I posted all of this detailed information for those that may be googling any of these topics that they may read my experience and be encouraged or further informed through my experience with MG. Well, that will update you up until now, January 1, 2015.